Rare Disease Day Symposium 201928 FEBRUARY 2019CARL-NEUBERG-STRASSE 1, HANNOVER, GERMANY
HOSTED BY ORPHANET GERMANY
Orphanet Germany and the Centre for Rare Diseases (ZSE) of the Hannover Medical School invited all patients, relatives, physicians and interested citizens to a public symposium on rare diseases on the occasion of the international “Rare Disease Day 2019” last February 28, 2019.
The program included 10 thematic lectures and an informative exhibition of booths by invited representatives of self-help groups and patient organizations, providing information on some of the more than 6000 known rare diseases.
This year, Rare Disease Day was celebrated by patient groups, policy-makers, healthcare professionals and industry representatives in a record 101 countries! We saw another successful year of the #ShowYourRare campaign with thousands of people using the hashtag to raise awareness and show their support.
The theme this year was “Bridging health and social care” which focused on bridging the gaps in the coordination between medical, social and support services in order to tackle the challenges that people living with a rare disease and their families around the world face every day.